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January 2016- New year


Ruben has had a really nice Christmas and new year break and is reluctant to go back to school, but he knows once he gets back into the routine it will get easier! We had a good chat about opportunities this year that Ruben may be able to access. Ruben is now 8 so this will mean that he will be able to apply to go on residential. We talked about this at length and Ruben was very excited that he would get the chance to experience these and was eager to apply to both Sense and Action for blind. This is something that will be explored.


Hospital appointment -


Ruben had an appointment at the children's hospital with Dr Parulekar and we all made a decision that he would now see Ruben in school as he visits the school to see other children, this would be easier option all round as it seemed pointless to keep attending hospital appointments when all it was doing was taking up time and causing anxiety, Ruben was happy with this arrangement. Should we ever need to be seen again this would not be a problem and we just get in touch, but I think after all these years of running back and forth to hospitals and Ruben having his eyes investigated we are now in a place to give it all a break as we are no further forward with any future developments and should there be we will be informed.


Peter pan – trip to the theatre with sense GOT group.


Ruben went to Coventry theatre with his Dad to see peter pan and have a tour around the theatre to get hands on experience of the actors and props. This play was audio described and Ruben had a good afternoon.


Action for blind- parents meeting


This is an opportunity to find out what is up and coming events and to network and share experiences with other parents. Today we had a speaker in talking about the EHCP which are replacing statements

I was also given an application for residential trip which I am hoping that I can get Ruben on to :)



February- Activities


Application form sent off for action for blind residential. Additional to this we have been sent an application form for Sense Short breaks, which we will also be applying for, Ruben is very excited!! fingers crossed

he gets accepted for one. Through the school holidays Ruben attended a few sessions with Action for blind one was a cooking session which Ruben enjoyed and the other was a trip to the cinema which went well.



March – Ruben stars in Chat magazine


Following all the media attention we were asked to do interview with chat magazine of which any proceeds would be put towards future sessions of echo location with Daniel Kish. The interview was around our experiences of finding out about Rubens condition and how we have moved on and found ways to better Rubens life.


Ruben was accepted on to both Action for blind and Sense short breaks he is very excited and looking forward to attending both.


April – Easter holidays caravan stay in Devon cliffs


We decided to take a short break away to Devon cliffs for the Easter holidays. Theo his friend Ben and Mom & Ruben. Unfortunately the day before we were due to travel Ruben go very poorly with a virus, having been to the GP we were advised to seek walk in centres should Ruben get any worse. Wer decided to carry on with our break away and Ruben had good days and bad days. On good days we made the most of it and spent time on the beach which was lovely as we were very lucky to have fine weather. We went looking around the rocks for crabs and managed to fill a bucket full of them, w even found jelly fish. Theo and Ben had fun playing football ! We also went swimming, went to the club in the evening, visited the arcades and went out for meals. The caravan was very spacious and Ruben enjoyed himself regardless of feeling poorly . Overall we all had a lovely break and decided to re book to return next year 2017 so Ruben can have a better experience. We are all very much looking forward to this.


May- Ruben goes on his first residential with Sense